Adolescents with a rare genetic disease have a great relationship with a stranger

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Adolescents with a rare genetic disease have a great relationship with a stranger

Goldenhar Syndrome makes friends with a complete stranger

Being a disabled person does not stop you from finding true friends who will care and love you unconditionally. But finding friends can be a problem, especially for young children with disabilities. Some children may see different people in them, but in reality we are all the same. We die for attention, care and love for others.

A teenager from Colorado, Austin Niyusa has peer problems. He suffers from a rare congenital disease called Goldenhar syndrome. He may have unconditional love and support from his family, but he also wants to date children of his age and make friends.

This was a constant problem since he was little, but when a visitor arrived at a snowy house in Colorado, everything changed.

Goldenhar Syndrome or “Oculo-Auriculo-Vertebral (OAV) Syndrome” is a rare congenital disease that has affected 2 in a million children all over the world. This congenital defect is characterized by an incomplete development of certain body parts like the ears, nose, soft palate, lip, and the mandible. This can also cause a craniofacial birth defect of the face and the head.

Her family pours water on her with love and care, but Austin tries to meet other people in the same situation. However, this condition is very rare, so it is unlikely to meet someone with Goldenhar syndrome. But once everything changed for Austin. In the end, he will meet a girl who is suffering from a state of health.

https://youtu.be/UZm8JgSlZHQ

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